Raising awareness

Ros Knight lives in Letchworth, Hertfordshire and was diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH) in 2016. After a difficult journey, the 50-year-old is sharing her story to raise awareness and encourage understanding.

Carol Duffus was told she had pulmonary hypertension in 2016,
and in this blog for PH Awareness Week 2021, she shares her experiences of delayed diagnosis and life with chronic health conditions.

Former counsellor Nerys Jones was told she had pulmonary hypertension in April 2021, a decade after her symptoms began. Here, the 68-year-old describes her difficult journey to diagnosis and how she is adjusting to the impact on her life.

Although Kevin McAllister has pulmonary hypertension, to look at him, you wouldn’t know there was anything wrong. Here, he shares his experiences of life with a hidden disability – and why he is campaigning for change.