My life with PH

Connie Price was given a devastating diagnosis of pulmonary hypertension as a toddler – but four years later, the future is starting to look brighter. Here, her mother Jane remembers the route to diagnosis and reflects on family life in the shadow of this rare disease.

Jess Wescott was diagnosed with PH at 20 and wanted to share her story to show that everyone has different experiences of the disease.

Pam Fenton was diagnosed with idiopathic pulmonary arterial hypertension in 2018, and her husband Graham gave up his job to help care for her.
They are sharing their story to help raise awareness of the condition and encourage more understanding and earlier diagnosis.

Emma Ferguson achieved a first-class degree in English Literature – and her time as a student taught her invaluable lessons about managing her PH too.