My life with PH

It’s been two years since Kate Alsford was diagnosed with idiopathic pulmonary arterial hypertension, and she’s learning to adapt to life with the disease.  Here she shares her challenges, her gratitude, and her advice to others at the start of their PH journey.

As told to the PHA UK in 2024 “I’ve had a problem with my liver for 23 years and four years ago, I went for a transplant assessment. You’ve got to be well enough to be able to get through the operation, but you also have to be sick enough to have the operation, so…

Raya Mynot on changing her name, and finding a partner that supports her fully with PH.

“It was 2008 when I was diagnosed with Pulmonary Hypertension with Eisenmenger’s Syndrome at the Royal Brompton Hospital in London. I had no idea what PH was and nor did my parents. Our lives had been turned completely upside down. I was 17 years old, and I could only have months to live. Looking back,…