My life with PH

Despite 24/7 oxygen and two serious diseases, PHA UK member Juliet Coffer is determined to live each day to the full. After discovering the benefits of moving more at home, she decided to revisit her dream of taking on a marathon by completing her own version instead – covering 3km across 30 days, all without leaving her living room.

Father-of-two Andrew Sharrock was diagnosed with idiopathic PAH after breathlessness worsened to blackouts.

When Shana Hindle was diagnosed with PH, she had no choice but to take medical retirement from the career she loved. Then a chance Facebook post led to her volunteering her skills to open a supported housing complex for homeless veterans in Lancashire – a role which has helped her in unexpected ways.

Barbara Fraser lives in Melton Mowbray, Leicestershire. In this blog, she reflects on 15 years since her diagnosis of Chronic Thromboembolic Pulmonary Hypertension (CTEPH).