Carers and loved ones

Dawn Shelley from Sutton became a full-time carer for her mum, Christine Codd, after she was diagnosed with PH in 2012. Her experiences of struggling alone have led to her setting up a Facebook group, ‘Carers for PHighters’, to help other carers access support and advice. Here, Dawn shares her story.

Chris Straw, aged 17, lives with his Mum, Jenny, Dad, Ian, and brother, Andy, in Sway Hampshire. His little sister Amy was born with PH in September 2004 and passed away in June 2006. Here Chris talks about growing up with Amy and his recent fundraising efforts in her memory.

Kerry’s daughter Paige was diagnosed with PH at the age of ten and she has been both her mother and carer during the eight years since. Here, the pair discuss what it means to live with PH together.